Alas, Still Sick
I’ve been doing so well with all my healthy living moves this summer, and people keep hopefully saying “Maybe this will get rid of your fibromyalgia”. For a long time I was sure to remind them that fibromyalgia has no cure. Later it turned to, “No, but I think it will make a big difference”. But somewhere along the way I think I started to believe it myself. Alas, not the case!
Don’t panic – it wasn’t a horrible day, I just had a big day yesterday (my best friend came back from 6 months in New Zealand!!! And there was a lot of swimming, and some frisbee). Anyway, I slept in a lot this morning (unintentionally I swear!) and was kind of low on energy for most of the day.
I should have expected it, and normally it would not have been a big deal at all (it really wasn’t that bad a day). The only problem was that I was totally pouting because I wasn’t magically cured. Not my finest moment, I’ll admit.
On the plus side, the repercussions from being so active yesterday were not nearly as bad as they would have been a few months ago! So all my healthy, stress reducing choices have started to have a positive benefit.
Despite my pouting, my day ended on a high note, so that was good :) In hopes of sending you into the night with a smile as well, I bequeath upon you some ear candy: Check out Bomb in a Birdcage by A Fine Frenzy. Such a good CD and a great group. Have a listen.
I totally understand what you are saying. When I had mine well managed with diet, exercise and minimal pain medication sometimes I forgot that I have fibromyalgia. But it wouldn’t take too long for my body to remind me that I can’t treat my body like any other young person does. Usually there are small daily reminders that things are not normal and then at other times my body slaps me in the face with a not so subtle reminder. When I was referred to yet again another specialist (as I moved to a different city) it was suggested that I might not have fibromyalgia – which gave me hope that I might have a condition that is curable. However, the rheumatologist confirmed my original fibromyalgia diagnosis. I needed to grieve the loss of an instant cure, but I still have hope (being an ex-medical researcher) that one day there will be a cure. But until then we need to keep supporting each other and I commend Jane for the courage to write with such honesty and wisdom. Well done to everyone living with fibromyalgia and making the most of it!